Motor Neurone Disease

Thank you for contacting me about support for people with motor neurone disease (MND). 

I know MND can have a devastating impact on a person’s quality of everyday life and be a real struggle for patients and their loved ones.

Please allow me to assure you that ensuring early diagnosis and support for those living with MND remains a key priority of the NHS.

With early diagnosis key to treating the symptoms of MND, I am glad that the National Institute for Health and Care Excellence (NICE) has published new guidelines for clinicians on the assessment and management of MND. These set out the signs and symptoms of the disease and recommend that patients suspected of having MND should be referred without delay. The Royal College of GPs and the MND Association have also worked together to produce a ‘Red Flag Tool’ which sets out key signs of MND to help GPs to identify suspected cases and ensure prompt referral. 

I also recognise the valuable contribution made by carers of people with MND, many of whom spend a significant proportion of their life providing support to family members, friends and neighbours. I agree that carers must receive the right support to help them carry out their caring roles and a new cross-Government National Carers Strategy is being introduced to look at what more can be done to support existing and future carers. 

Thank you for inviting me to the June 2020 Meeting of the APPG for MND, while I am unfortunately unable to attend, I will continue to follow this issue closely.